All Posts Tagged With: "osteogenesis imperfecta"

Change of Heart, Jodi Picoult

Handle

Synopsis of CHANGE OF HEART from Jodi’s website:
When Charlotte and Sean O’Keefe’s daughter, Willow, is born with severe osteogenesis imperfecta, they are devastated – she will suffer hundreds of broken bones as she grows, a lifetime of pain. As the family struggles to make ends meet to cover Willow’s medical expenses, Charlotte thinks she has found an answer. If she files a wrongful birth lawsuit against her ob/gyn for not telling her in advance that her child would be born severely disabled, the monetary payouts might ensure a lifetime of care for Willow. But it means that Charlotte has to get up in a court of law and say in public that she would have terminated the pregnancy if she’d known about the disability in advance – words that her husband can’t abide, that Willow will hear, and that Charlotte cannot reconcile. And the ob/gyn she’s suing isn’t just her physician – it’s her best friend.

HANDLE WITH CARE explores the knotty tangle of medical ethics and personal morality. When faced with the reality of a fetus who will be disabled, at which point should an OB counsel termination? Should a parent have the right to make that choice? How disabled is TOO disabled? And as a parent, how far would you go to take care of someone you love? Would you alienate the rest of your family? Would you be willing to lie to your friends, to your spouse, to a court? And perhaps most difficult of all – would you admit to yourself that you might not actually be lying?

Part of a Conversation with Jodi Picoult from Jodi’s website:

The characters in your books are always layered and complex, as are the issues that plague them. How do you create a character like Charlotte that readers can love and hate at the same time?
Well, for me, it’s a lot harder to create a flat character who’s either all villain or all hero. Most of us are a combination, aren’t we? Charlotte’s the best kind of character – one who is doing something that looks unpalatable, but for all the right reasons. In this way she reminds me a bit of Nina Frost from PERFECT MATCH. You want to hate her – but can you really say that if it were you, you wouldn’t at least think about doing the same thing she does? Charlotte’s tragic flaw, in my opinion, is that she is so single-minded in her pursuit of making Willow’s life easier that she neglects the rest of her support system – her friends, and her family.

How did you choose the recipes that appear throughout the book? Do you believe in the significance they hold for Charlotte? Are you a baker yourself?Jodi
Before I got married, I was lucky enough to have a roommate who became one of my best friends. Now, Katie works at the Smithsonian organizing special events – but prior to that, she went to culinary school. When I knew that I wanted Charlotte to be a baker, I turned to her and asked for help. Charlotte, as a baker, would believe that the sum of the ingredients is so much more than its parts – this is true for her when it comes to Willow, too, who is so much more than a litany of moments where she broke a bone or had a surgery or was sidelined to recuperate. I do bake (too much, if you ask my husband, who is constantly cursing me for a pan of brownies cooling on the stove that he is compelled to eat) – and often I have been struck by the metaphorical language of baking. I wanted Charlotte’s cookbook to be a collection of these terms, with accompanying recipes. So one day I emailed Katie a list – words like weeping, hardball, blind baking – and asked her to create recipes that might involve each term. I have to admit, that rarely is my fact checking process so delicious…I got to bake, and road test, every recipe in the book.

During the course of the trial, Amelia develops an eating disorder and starts cutting herself. Did you see this as the natural progression for her character? Were these types of behavior in siblings of disabled children something you found to be common while conducting your research?
While doing research with a child psychiatrist about adolescent bulimics I learned that cutting is very common for those girls. Apparently, bulimia involves a lot of self-hatred…and cutting figures into that. Siblings of disabled children aren’t always like Amelia, thank goodness – I’d hope that their families do a better job of including them than the O’Keefes do. For Amelia, having a sibling with a disability is compounded by the fact that she feels she’s failed her sister (in Disneyworld, for example) and that there are very high stakes in that household for being a child who isn’t perfect (which would be Amelia’s interpretation of her mother’s lawsuit).

You’ve said before that you know how a book will end before you write the first word. Was this also true for Handle with Care? Do you ever change your mind about an ending as you get deeper into the story?
I do know the ending before I write a single word, and I did here too. I will tell you that I think Handle With Care is the saddest book I’ve written – and coming from me, that’s pretty dire! I never wavered on the ending, however, because there’s a bit of a morality lesson in there as well – it’s a real “Be careful what you wish for” moment.

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